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Children's Organ Transplant Association
COTA is the company helping me raise the money to get my bone marrow transplant.

Find out more about MPS!
This link will tell you more about me and help you understand why I need a bone marrow transplant.

How to become a bone marrow donor
This is an important link that will tell you how you can help people like me who need bone marrow.

COTA News
This link will give you all the latest news with COTA, the nice people helping me out.

Carolina's Cord Blood Bank
This link will tell you about a treatment alternative for bone marrow that could save lives.

Susannah White

 

Take heed that ye despise not one of these little ones; for I say unto you, That in heaven their angels do always behold the face of my Father which is in heaven. - Matthew 18:10

Susannah is from California. She went to Minneapolis to have a transperson earlier this year, but it didn't work out and she had to go home for a little while. Susannah had her transperson on October 10, 2000. Now they gotta wait til the marrow stuff starts to grow. Please ask God to make sure everythin' goes gud and she gets 100% A+.

We got an e-mail recently from Susannah's mommy and daddy. She is havin' sum problems with bugs. It seems these little bugs are climbin' up her central line and then colonizin'. They are called Vancomycin Resistent Enterococcus (VRE). These are really bad bugs cause they don't give up when the Vancomycin comes (it's a really strong antibiotic). The gud news is there is anuther new medicine that can help chase them away, so please pray that the new stuff kills all the bad bugs or chases them away and Susannah gets better real soon.

We got sum more e-mail from Susannah's Mommy and Daddy. They are doin' gud. She's also A+ 100%. Please ask God to keep it that way and make the enzyme stuff become normal.

Just when ya thawt it was safe to post a prayer 'quest, sumthin' happens. The gud news is when it happens, it let's us know what's happenin'. The bad news is Susannah wasn't doin' gud. She's had to go to the warm blanky room 'cause there were sum bugs in her lungs. They thawt it mite be fungus, but is wasn't. They said it was gud news 'cause that meant it was just virus bugs, but if ya ask me, bugs is bugs and I don't like 'em. When we heard last, she was on the vent, but s'posed to get off soon. She also had a chest tube that wud come out when she got off the vent. Please pray she get's healed real soon. She's a really pretty girl and I want to meet he in person sum day when we all get better.

We got an update from Susannah's daddy and mommy. She is still on the vent, so pray real hard. I mean REAL hard for her, Jaxon, Tommy and all the other kids on vents and things rite now.

We haven't heard much from Susannah's mommy and daddy, but last we heard, the doctors cudn't figure out what was wrong with her. Please ask God to fix her. She's a really cute little girl who deserves to become a big girl sum day.

She's off the vent, but they still haven't figured out why she keeps havin' feevers. Ask God to get rid of 'em please.

Last Saturday, Susahhah went into respiratory failure. It took 'em five ours to get her stable. She's on the vent again and has ta have full blood pressure support. Guess ya know what I want ya ta do.

Susannah seems to be doin' pretty gud, 'cept her brain is thinkin' a little slow. They think it's 'cause of all the drugs they been givin' her. Please pray that's all it is and that she starts thinkin' and doin' faster than her mommy and daddy put together.

As of a cuple of days ago (August 9, 2001), Susannah was havin' problems. She keeps findin' feevers all over the place and can't seem to chase 'em away. They finally decided she had VRE (vancomycin resistant enterococcus). Those are sum really bad bugs and they are hard to get rid of 'em. Please ask God extra speshul nice to chase 'em away - for gud. They waz s'posed to go home on July 11, but they haven't made it yet!!!

I just looked at Susannah's page. She has sum problems with her mommy and daddy 'bout updatin', but at least her's is only a week old (May 1, 2002). She's doin' fine. They are back at home in sum place called San Diego, but they're fixin' to go to Minnesota for a check up. Susannah has been having a hard time makin' baby blood sells. Please ask God to fix that. It looks like she's gettin' better, but ya can never pray too much.

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