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Children's Organ Transplant Association
COTA is the company helping me raise the money to get my bone marrow transplant.

Find out more about MPS!
This link will tell you more about me and help you understand why I need a bone marrow transplant.

How to become a bone marrow donor
This is an important link that will tell you how you can help people like me who need bone marrow.

COTA News
This link will give you all the latest news with COTA, the nice people helping me out.

Carolina's Cord Blood Bank
This link will tell you about a treatment alternative for bone marrow that could save lives.

Julia Moran

 

Take heed that ye despise not one of these little ones; for I say unto you, That in heaven their angels do always behold the face of my Father which is in heaven. - Matthew 18:10

Guess ya wud never figure that Julia is the youngest one in the pikture.

Julia is a cute little girl that had her transperson 'bout 43 days ago. I haven't seen a pikture of her, but I know she's pretty 'cause she has a pretty name. Her mommy is Patty and her daddy is Jay. Also, her sister Kristen gave her the marrow stuff. Pretty neat, huh?

Anyway, she has 73% donor marrow, but they don't know 'bout the enzyme stuff yet. She had a little problem last week (today is 1-9-01) when her white blood sell count went down, but it's comin' back - Go sells Go!!! Please ask God to see that she keeps the donor marrow stuff and also her enzyme level is gud and stays gud. It also wudn't hurt if ya asked him to see that the white sells (which are red if ya ask me) stay where they are s'posed to be.

Julia lost her transperson. Pray that she can get anuther transperson as soon as possible and the sekund one works.

Daddy got the followin' message from Julia's friend yesterday:

"Dear Kristi, little Julia has had a major set-back. She stopped breathing at home last night. Her dad, Jay, did CPR until the EMT's arrived. She is in PICU at Connecticut Children's Hospital on the vent. Please pray she will be strong enough to get better. Apparently, her lungs were bleeding. Also, pray for her poor dear parents (Jay and Patty) and her sister, and brother who were all home at the time and had to witness that. Thanks. Love, Lisa "

Last we heard, Julia was doin' better, but she had a long way ta go. She was off the oscilating vent and on the regular one, and yes, I asked Daddy ta spell oscilating.

Julia is now off the vent. That's really gud news, but she duz have sum bugs that need to go bye-bye. Please ask God to chase 'em away. She is also havin' sum problems keepin' enough plates in her blud, so please pray that the plates come back. I guess they are little plates 'cause she cudn't fit big ones like we eat off of in her blood. She also has to have an NG tuby thing and get stuck lots 'cause she isn't eatin' very much. Please ask God to help her get lot's better so she can have her transperson.

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