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Children's Organ Transplant Association
COTA is the company helping me raise the money to get my bone marrow transplant.

Find out more about MPS!
This link will tell you more about me and help you understand why I need a bone marrow transplant.

How to become a bone marrow donor
This is an important link that will tell you how you can help people like me who need bone marrow.

COTA News
This link will give you all the latest news with COTA, the nice people helping me out.

Carolina's Cord Blood Bank
This link will tell you about a treatment alternative for bone marrow that could save lives.

Taylor Blair

 

Take heed that ye despise not one of these little ones; for I say unto you, That in heaven their angels do always behold the face of my Father which is in heaven. - Matthew 18:10

Taylor is anuther guy who had a bone marrow transperson. So far, everythin' seems gud. Pray that it stays that way.

Below is Taylor's most recent update. Guess ya can figure out what it says on your own, even though this is anuther grown up who duzn't know how to spell.

Friday, June 22, 2001 at 08:54 AM (CDT)

Hi everyone,

Well I can't wait to tell you. We finally got the results of Taylor's immune study. To quote "His immune functions tests are completely normal" Now this is good news. I don't understand all the numbers but attached to the letter was the immunization schedule for the year. Finally, to get back on track. Dpt/IPV/HIB first, then a second round two months later. Then we have to get titers done. This will measure his immune system response. If this comes back good, MMR is next. But slow and sure is the policy now. Taylor is going to preschool in September. Just about the same time as the MMR is due. Hope none of the kids in his class are immune suppressed as this will mean Taylor will be out of school for a month so as not to expose anyone else. Otherwise all is on track. Taylor will go to school in the morning and Brucee with go in the afternoon.

Taylor is going full steam every day. He is starting to eat a few new items. He loves cantaloupe and cucumbers. Still doesn't like too much else but this is progress. He goes to therapy for speech, OT, and PT at the office. He wasn't making much progress at home. But the office is more focused. He is between sizes in clothes. He wears either 24 months or 3t depending on the style. He is 34 1/2" tall and 32/33 lbs. He has a temper and will not be "messed" with. All in all, good things are happening.

The Lord has blessed us tremendously.

Thanks to all for continued prayers

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