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Children's Organ Transplant Association
COTA is the company helping me raise the money to get my bone marrow transplant.

Find out more about MPS!
This link will tell you more about me and help you understand why I need a bone marrow transplant.

How to become a bone marrow donor
This is an important link that will tell you how you can help people like me who need bone marrow.

COTA News
This link will give you all the latest news with COTA, the nice people helping me out.

Carolina's Cord Blood Bank
This link will tell you about a treatment alternative for bone marrow that could save lives.

So, what is this MPS stuff anyway?

Mucopolysaccharidosis (MPS) is a disorder caused by bad genes. See, in people without MPS, the mommy gene and the daddy gene get together to make a baby gene that makes this enzyme stuff called alpha-L-iduronidase. This enzyme cuts up things called mucopolysaccharides that are used to make connective tissue in the body.

In people like me, there was a thing called a recessive gene in both my mommy and daddy that made a baby gene that won't make the enzyme I need. This leads to all sorts of bad things that affect every part of my body. If I don't get a transplant, I can expect to die in 5-10 years. Most of those years won't be very fun. So...I am getting a transplant.

If you would like to know more about MPS, you can click on the links below.

If you don't want to know more about MPS, you don't really have to click on one of the links below. You might find them interesting though.

Links about MPS:

 

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